研究进展

书写走向死亡:两篇埃及疾病叙事中的男性患者声音与医疗图景

来源:Philosophy, ethics, and humanities in medicine : PEHM · PMID 42972362 · DOI 10.1186/s13010-026-00240-3 · 来源:IMA 知识库《文献层·文献监控卡片》2026-11-05 期 · 全文级(file_id dAlZBwueyWSz,实际下载核验 1,395,640 B) · 全文已获取并通过三重归属校验

时间标签:数据日期 2026-11-05 · 生成时间 2026-11-05 05:30(Asia/Shanghai)| 检索窗口 PubMed edat 2026/11/02 – 2026/11/06 | 情报发生日期 2026-11-05

研究问题

His background as a medically trained doctor and his job as an investigative journalist enabled him to put forward his vulnerability in a more objective, documentary style that does not shadow the narrative moments of introspection.

方法

Traditionally, most accounts have relied on the biomedical model, which focuses purely on prognosis, diagnosis, and treatment, with little to no attention to patients who experience and suffer from pain associated with various medical conditions.;Charon emphatically underscored the salience of patients’ experience maintaining thatwithout the narrative acts of telling and being heard, the patient cannot convey to anyone else- or to self- what he or she is going through.;More radically, and perhaps equally true, without these narrative acts, the patient cannot himself or herself grasp what the events of illness mean [3].In other words, illness narratives enable patients to uncover aspects of their illness journeys that biomedical discourse cannot capture.

核心结论

To conclude, the paper proves that these narratives are a valuable addition to the young Arabic archive of illness narratives while confirming that vulnerability, masculinity, and the writing of illness are integral to navigating the unequal worlds of medical care.

局限

In reading illness narratives, the moment of diagnosis is usually seen as a dividing point in one’s life timeline, signalling a rupture that fundamentally defines the boundary between life before and after the announcement.However, Bury’s biographical disruption should not be applied indiscriminately across different narratives.;However, writing is not a simple response to the announcement of adenocarcinoma or the failure of treatment.;However, this uncertainty is the only certain aspect in the lives of chronically and terminally ill patients; the future is known: it will not materialise.This certainty of Abouelgheit’s impending death was a result of his reduced physical functionality and exhaustion of all possible medical treatments.

对本项目的价值

中等价值:属「代谢 / 内分泌 / 肝肾老化」方向;代谢 / 内分泌 / 肝肾老化的界面栏目可用作本项目文献库与综述素材。 | 价值分 2.6/5(★★★☆☆)

全文来源

PubMed PMC JATS(正文 57,277 字符,题名指纹 0.85,已过 PubMed PMCID 官方关联 + 题名指纹 + 正文长度归属校验)

原文题录

  • 中文题名:书写走向死亡:两篇埃及疾病叙事中的男性患者声音与医疗图景
  • 英文标题:Writing towards death: male patient voices and medical landscape in two Egyptian illness narratives.
  • 期刊与标识:Philosophy, ethics, and humanities in medicine : PEHM · PMID 42972362 · DOI 10.1186/s13010-026-00240-3 · PMC PMC13729317

A 级证据分级:A 级(同行评议人体研究)

本文属人体研究证据,但需注意:观察性或小样本干预的结论不等于已证实临床获益;效应量与长期安全性仍需更大规模、更长随访的试验验证。

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